I gave it a 7.5 out of 10

A very feeble attempt at affirmatie action

A bit overrated, but still an amazing film

There are moments that feel comical, some horrific, and some downright inspiring but the tonal shifts hardly matter as the end results come to a film that's perfect for this time.

This film took more time then necessary to make the viewer aware or the ravages of this disease. I found myself wanting to fast forward at places where time seemed to stand still. I would have rather seen a movie on this subject with less focus on a single individual. I would like to see another ob this topic better produced and directed. This one should have been edited down to about 60 min. and it would have earned a 10 from me.

I only know about Progeria from this film. Sam's spirited enthusiastic and keenly goal oriented mentality made me soar with joy. He is one fortunate child to have so many wonderful caring brilliant people support and surround him. He recognizes the importance of the work his parents are involved in to prevent this disease from taking just a handful of children throughout the world. You see him bravely face the endless procedures to document his progress in drug trials. You share his love of music and the drumline.I rarely get to catch a glimpse of such a beautiful child and his life not devoured by death, disease and doom.Very inspiring documentary about a boy who just wants to live and make a contribution to society. I feel blessed to have known him through this vehicle and pray that the efforts of all involved will produce a cure.High recommend for all who have a challenging chronic illness or children with incurable diseases. Very uplifting especially when you are not sure of the outcome. Sadly Sam has since passed but his memory will be forever captured in many hearts.

I have been rating movies on IMDb for quite a few years but have never written a review. After seeing this documentary I felt I needed to write something that would encourage people to watch it.Being a father of a 2 year old this documentary was hard to watch at first. I found myself putting myself in the parent's position and found it heart breaking. The more you watch the more of Sam's personality shines through and this brought a smile to my face. By the end I felt uplifted and lucky that my little boy is healthy. I will never take that for granted.This should be watched by everybody. If you can watch this without welling up then you have no soul.Sam has sadly passed away recently. My thoughts go to his parents and friends who must miss a brilliant and brave boy.

Three intertwined stories are creatively woven together in this somewhat understated gem: a story of how a child with the rare and untreatable disease progeria lives and views life as it has been dealt to him; a chronicle of how his parents'love for him provided them with moments of fear, anxiety, struggle and yes, celebration; and an insider's view of how the world of medical research and clinical trials really works.Connect these dots with the themes of love, courage, persistence,and overcoming tremendous odds and you have a film that made me think and feel. And think and feel some more.